Thank you to all who joined with us at the Massachusetts State House to honor the over one million Americans who have lost their ability to communicate as the result of a stroke or brain injury and help raise awareness of this debilitating condition.
Over one million Americans currently are living with this acquired language disorder and over 100,000 more Americans acquire this disorder each year. Nationwide aphasia remains unknown and misunderstood. We will continue our efforts to bring much needed attention and awareness in an ongoing effort called the Aphasia Awareness Project.
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June 27, 2013 - Aphasia Awareness Day in MA
** GOOD NEWS ** APHASIA STUDY COMMISSION BILL H.3455
Between the in-person testimonies and the written testimonies presented to the Joint Committee on Public Health (PH), aphasia became a very important topic at the Massachusetts State House. The most amazing thing happened on Sept 10, 2013; the impact of aphasia, spoke for itself and the PH committee held an executive session on October 1, 2013 that moved the bill forward with a favorable recommendation. Now the bill process gets complex and has to move through various committees, we will still have to be patient.
This was a great team effort and because we had 7 in- person testimonies and 14 written testimonies, and support from the aphasia community, Senator Keenan and Representative Sanchez, the chairmen of the PH Committee, left that hearing knowing how important this aphasia study commission will be to individuals with aphasia and their families! They did not sit back but took quick action!
As things move forward we will update this site and will provide a guide on how to contact your legislators to help get support for the bill.
Our mission to raise aphasia awareness continues and will not stop until everyone is familiar with the term aphasia. For the over one million Americans afflicted with aphasia and the 100,000 more Americans that will acquire this debilitating disorder each year from stroke or brain injury, this mission is for you and your families. You will no longer feel isolated from humanity, silenced by a condition that only few people have heard of. You are not alone. Your challenges go beyond words and we will continue to advocate for your rights. Once people in a position to make a difference learn about aphasia, they will help us ensure that all Americans have equal access to our fundamental rights. Loss of one's speech does not translate into loss of one's rights.
To all survivors with aphasia,
Your inspiration, strength, and courage are unparalleled.
Thank you for showing us that hope always exists!
* Aphasia Silver Ribbon Awareness *
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